Know Rare Connect: Living With Myositis
Journalist Lindsay Guentzel describes navigating a diagnostic odyssey and how she manages day-to-day life with myositis in an impactful webinar.
A Rare Mom's Take on Living with Refractory Seizures
Rare mom Samantha Deschenes gives us an unfiltered look into life as a parent to a child with refractory seizures.
Journaling Your Journey
Join Know Rare in a heartfelt exploration of the profound impact of journaling on the lives of those touched by rare diseases. In the “Know Rare Connect: Journaling Your Journey” webinar.
Connect with Members of the Know Rare Team
In this recap of our first live Know Rare Connect event, we meet some incredible members of the Know Rare team and hear their stories.