Ambiguous Loss is unique in that people facing this kind of loss are denied traditional closure rituals and acknowledgements, like memorials and respite periods, as well as typical social support and bereaved status. They are expected to carry on as usual, and may be stigmatized when they do not.

From trailblazing researchers to game-changing public health advocates, women in medicine historically faced marginalization due to their gender, and, in some cases, their race. Nonetheless, they changed the playbook for the physicians who would follow them, as well as for the patients who would benefit from their discoveries in the future.

Myasthenia Gravis (MG) is an autoimmune disease in which the immune system produces antibodies that interfere with normal cell function, instead of attacking invaders like bacteria and viruses.

אנשים עם מחלות נדירות עשויים להרגיש פגיעים יותר מהרגיל ככל שמתקרבים החגים. ככל שאנשים מבלים יותר זמן בבית, מספר מקרי הקורונה ממשיך לעלות. אך ישנם מומחים שאומרים כי לאנשים עם מחלות נדירות עשויות להיות כישורי התמודדות טובים מהממוצע בהתמודדות עם השינויים שהביאה עם המגפה העולמית.

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My son Jacob seemed okay when he was born in September 2017, with minor feeding issues that went away. But as the months went on, some things began to disturb me.

If you’ve spent any time reading up on or living life with a rare condition, chances are you’ve come across the terms “genetic disorder,” and “gene therapy.” But what exactly do they mean? And what differentiates them from other diseases and treatments?

Pre-procedure anxiety is a normal part of the medical process. In fact, up to 80 percent of surgical patients are reported to experience anxiety before operation.

Plasmapheresis is a procedure used to filter out antibodies that are mistakenly attacking the body’s own tissues. Here’s what to know about the ins and outs of the procedure.

Here’s a staggering statistic: only 5 percent of rare diseases have approved treatments. But that doesn’t mean there isn’t extensive work and research being done to find therapies, procedures, and eventually, cures for these conditions.

On September 14, 2018 my healthy seven-month-old baby had her first seizure. It was scary. Really, really scary. It was hard to believe that this was really happening to us. After a lot of tests and tears, it became clear that this was not a one-time seizure.